Giving SARMS to 16 y/o with MD (Ethical Question)

[FIT4FAITH]

So here’s a real dilemma. NOTE: I understand NOT giving gear, etc to young folks, but read on…

Young man of 16 years old has Duchenne muscular dystrophy (MD), with no known cure. Unfortunately this young man lately he seems to be digressing faster in terms of his muscle wasting and also cognitive memory abilities. Usually with this form of MD he will not live past 26 y/o. He is goign down hill much faster and it might be just a couple of years until he dies. Usually breathing gives out or their heart.

Most of the time Doctors will only treat with cortisteriods such as prednisone, as well as assisted ventilation and PT, hopefully giving them an extra year or two, and that’s about it. Although there are some research studies out there chances are he would not get on one. BTW, he CANNOT get in to seeing a doctor until OCTOBER!!!!

SO HERE WE GO WITH THE ETHICAL QUESTION: As a parent, at what point would you say “F” it! and try putting your son on SARMS. Since we are already in the "know" as to the capabilities and seemly safe dosing would you start giving your son SARMS? (with a fitness program) Specifically to at least slow the pace of the muscle wasting, thus prolonging life and/or quality of life.

This is a sad situation as a parent and also raises moral, ethical and emotional issues.

 

[Dorin76]

Well, your son already has issues, But sarms? If this were my son I would do it, but I would say am not most experienced with these and the only one I could think of would be GW 501516, also known as Cardarine! It is known for helping to retain muscle and and aid in maintaining stamina. God bless you and family in this situation! I can not imagine what you are going through!


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[JackSteel]

I would do it in a second. What is there to lose?


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[DT117]

Honestly man, I would do whatever I had to do if it improved my sons life. What a sad situation this is.

 

[drjay9051]

Well, speaking as a medical professional:

I would speak with your son and make sure he FULLY understands the issue. It is his life even though he may be a minor.
Too often in my field I find that the "professionals" are telling the patient what to do.

It really should be a joint decision between patient and doctor.

I have heard tons of stories about patients who were discharged because they dare to question the doctor or even suggest trying to lower cholesterol and/or blood pressure via diet and exercise vs meds. How dare yo the patient question me, the doctor.

Long story short: If you cannot find a professional who is willing to help in this regard I would certainly try SARMS.

Now of course the issue becomes giving your child an investigational or research compound.

Have all avenues been explored? Check out a drug known as Eteplirsen and also recently approved in Europe the drug known as ataluren.

If you have a good doc and no other way to turn I for one would not fault you for trying to help your son.

As you know the prognosis is not good and majority of those with Duchenne dystrophy are wheelchair bound by age 12-13.

Best of luck. Any help I can offer PM .

 

[cmb5017]

I would do it for mine...and if that didn't work I'd even be willing to use 100mgs of test a week (that's just me) I mean most u can do is prolong his life....a few extra years could mean break threws in medicine..we're only here once...I'll pray for him. Maybe some more will join me?
Wish u the best

 

[FIT4FAITH]

Copy that on talking to the young man, and letting him decide what to do.

Yup looking at Ataluren, but it is Europe. Trying to see how to get around that.

Also cannot get to another specialist until October, so that is another frustration as there seems to be no concern on the part of the local medical profession. Just a couple hours ago a friend in the medical field volunteered to help navigate things and get him into a specialist sooner. So hopefully that'll happen.

Just getting all the ducks in a row.

 

[Dorin76]

I would do it for mine...and if that didn't work I'd even be willing to use 100mgs of test a week (that's just me) I mean most u can do is prolong his life....a few extra years could mean break threws in medicine..we're only here once...I'll pray for him. Maybe some more will join me?
Wish u the best

Was doing that with my first post! Also, it never ocvur to me to not onclude your son on the decision! I back his making this choice entirely! Good to meet you DrJay! Is another medical professional here! Great! Am EMS/EMT certified LMA/LNA and student physical Therapist!


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[rockmfhudd]

there are a lot of med prof in here. I am also emt certified but not practicing. I would agree with these fellas I would do whatever is necessary to keep my son alive or healthy. I was gonna say test as well I mean it was prescribed to aids patients for muscle wasting and it prolonged a lot of lives. however that is a decision you and your family need to decide. I will pray for you guys.

 

[DylanGemelli]

99% of the time i would defiantly say know but as well all know, there are definitely exceptions to the rule and this is ABSOLUTELY one of them... if it were my son, i would not fucking hesitate... this is the safest option to go with and as you know, they were DESIGNED for this particular issue... like i said, 99% of the time i would say no but this is clearly an emergency situation and i can definitely say that i would do it without thinking twice... you can run one that is not very suppressive... i would FOR SURE go with mk2866 and you could add s4, or lgd4033 or both... that would be the best bet here...

 

[drjay9051]

99% of the time i would defiantly say know but as well all know, there are definitely exceptions to the rule and this is ABSOLUTELY one of them... if it were my son, i would not fucking hesitate... this is the safest option to go with and as you know, they were DESIGNED for this particular issue... like i said, 99% of the time i would say no but this is clearly an emergency situation and i can definitely say that i would do it without thinking twice... you can run one that is not very suppressive... i would FOR SURE go with mk2866 and you could add s4, or lgd4033 or both... that would be the best bet here...

Got to agree, Dylan. Give SARMS a go. Of course in my mind I see the folks at DCF (Dept. Children & Families) getting involved and not in a good way. Followed by attorneys. It should be kept hush hush in this scenario.

I have only seen a few cases of Duchenne dystrophy and it sucks the big one.

Truly a shitty disease.

 

[DylanGemelli]

Got to agree, Dylan. Give SARMS a go. Of course in my mind I see the folks at DCF (Dept. Children & Families) getting involved and not in a good way. Followed by attorneys. It should be kept hush hush in this scenario.

I have only seen a few cases of Duchenne dystrophy and it sucks the big one.

Truly a shitty disease.

well said and excellent points bro... good looking on that for sure!

 

[drjay9051]

Emflaza just approved in USA !!

http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm540945.htm

Looks like original poster cannot receive PM.

Hope he is reading the thread

 

[DylanGemelli]

NICE BRO, thanks for posting and thinking of the OP... your a good fucking dude man.. i really like that